Other Helpful Resources

BOOKS

Conquering Your Child's Chronic Pain: This is the most helpful book, in my family's opinion, written about chronic pain for kids. Before we even saw Dr. Lonnie Zeltzer, the author, or had my proper diagnosis, my parents read it. They said it comforted them and helped them understand what was happening in my body and mind. Dr. Zeltzer, in my opinion, is one of the most intelligent and kind doctors I have ever had the pleasure of knowing. I will forever be in debt to her; she saved my life.

WEBSITES

National Insitute of Neurological Disorders and Stroke: This website is a lot more professional, and boring, but it is much more detailed when it comes to the medical aspect of chronic pain and can be very informative.

American Chronic Pain Association: This website covers everything that has to do with chronic pain and how to treat it. Give it a look!

MedicineNet.com: This website doesn't have a lot of details, but it provides an overall picture of what chronic pain is to the medical world.

WebMD: This website provides a guide to realizing your symptoms of chronic pain and managing them.

Whole Child L.A.: This website is not only about chronic pain, but is specifically for kids, which makes it that much more amazing. Check it out because it is very well done and extremely informative.

UCLA Pediatric Pain Program: This website is a friendly review on how to cope with chronic pain for both parents and kids. It also has stories and experiences of people going through exactly what you are going through.

HOW TO FIND HELP

I felt embarrassed by my chronic pain and I absolutely hated it. Some people thought I was faking and even I thought there was something wrong with me, so whenever my Dad would bring it up with people I'd get mad at him. But, it turns out that his talking to all those different people and getting the word out is what actually helped me.

My story traveled across country and people were calling in favors to get me appointments with different doctors. That's how I found the clinic that ended up saving my life.

Some people are not going to believe you, that's just the way it is, but then they are not your true friends. You can't be afraid of that because you never know what might happen if you put yourself out there. If the doctor you have now doesn't believe you, then change doctors because you need to find one that is behind you 100%. You need one that will support you and take you seriously. Not all doctors are like that.

Most doctors, if they don't see anything wrong on the x-ray, think there is nothing wrong and you are just being a drama-queen/king. That is not the case. Doctors can not see pain so they have no right to tell you that you are not having it. Find the right doctor and the right support group and you will be golden.

This is a painting I made showing the hope that comes from leaning on someone else and feeling supported no matter what.